Hope & Inspiration
See this beautiful website created by the father of one of our recovered patients: www.sailhome.org
Now read Kris’ touching letter about her daughter Macie and the Generation Rescue (movie about autism entitled “Autism Yesterday.”)
“It is a beautiful film and very informative. . . . I sent this letter to the founder of Generation Rescue to thank him for making such an incredible film. When you read my e-mail, I think you will see why. Macie continues to be my inspiration and reason to fight for the kids and families affected by autism.”
The email letter:
I just wanted to share something with you all as a result of your DVD.My laptop was out in the garage today and the DVD was sticking out of the slot. I guess my 7 year old,”recovered”daughter popped it into the computer and watched it for a bit before I realized what she had done.We watched together for a bit.I have never told Macie that she is, was autistic. I have only told her that she is allergic to some things and has to take vitamins because her body doesn’t always work right. When we have chelated,I have told her that her body isn’t able to get rid of bad stuff like some people and so we take things that help get the bad stuff out. Anyway, she continued to watch and listen.Every now and then, she would turn to me and say things like, is that what happened to me, that is what I used to do, or ask if she did that too when she was little. Then she asked if she was autistic. I told her that yes, she was, but that she was almost all better now because of all of the hard work that she did with her vitamins and working with her teachers and the space machine (hbot). She loved watching the kids and seeing them get better. By the end, she knew all of their names.When it was over,she turned to me and said, “Mom, maybe we should write to the President of the United States and tell him not to give anymore shots to kids because it makes them get lost.”I turned to her and took her face in my hands, tears began to fill my eyes. I was, at that moment, so incredibly proud and sad and overwhelmed, encouraged and hopeful. I told her that what she just said was the smartest and most beautiful thing she has ever said in her whole life. She beamed, we hugged and then she said, “I love you, mom”.I will remember that moment for the rest of my life. And it has given me more resolve to continue the fight. Thank you for this wonderful movie.
A beautiful poem written by Sally Meyer, that was shared with us by email.
It glimpses into the heart of one parent in their journey of having a child with Autism.
had happened to me,I had been so careful,
I made an appointment with my doctor, when I was barely a month along,
I took good care of myself, I ate well,
and didn’t abuse my body with drugs or alchohol, or smoking.
I felt such rage at first, this was not fair,
some women neglected themselves, and didnt care for the child inside,
and their child was perfect. Why not mine?
happening to me, I would wake up in the night, and it would hit me, my
child has autism, and then I would plug my ears, trying to stop the
voices in my head, I would bury my head in the pillow, refusing to
believe this was happening to us. It took me a long time to let it sink
in, and to this day, I sometimes forget, and then the realization hits
me, and it knocks me to my knees again. It takes all my strength to get
up. But I do, because I have to, I have to be there for my child.
tears in the middle of the night, somehow it always seems worse in the
night. The house is quiet at last, and there is time to think, to
ponder, to pray. Tears though are such a relief, without their outlet, I
would have gone crazy. But, I have held them back so many times, in a
store when someone makes a cruel remark,
or a child who approaches mine, then backs off with that ‘look’ on his face.
I refuse to cry then, because I still have my pride, and it although it
is tattered, I cling to it like a security blanket.
air, when they found out.
Sometimes I wanted to scream “It’s not catching, ” but they wouldn’t hear
me, they were too busy keeping their child away from mine. The phone
stopped ringing too, and people would turn away at Church, avert their
eyes when my child had a tantrum. The isolation is the hardest
thing………. being alone hurts. At the time in my life when I needed
friends and family the most, the pain of them looking the other way, was
indescribable. But I have found friends, people who know the path I
take, for it is their journey too. For this blessing I am so grateful.
These are the true friends, the ones who are there for me, when life is
be like other children, I have wept many tears for him. I have spent my
waking hours, and sleepless nights worrying about his future, who will
care for him, what kind of adult will he be? Will someone be there for
him, when I am gone? There is such pain in not knowing, there is nothing
so hard for a parent, than realizing that one day, you will not be there
to take care of your child. And knowing that this child will always need
your care. But there is Solace too, and I have felt this peace,
I have learned to accept this Autism, I cannot erase it,
nor will I embrace it. But I have come to a feeling of peace, and I go on.
others look on, and instead of holding out a hand to help, they stand in
judgement. Don’t judge me, when my child acts out, when he screams
because something has changed in his environment, he doesnt do it
purposefully, he is only reacting to his feelings. I am a good mother, I
love my child like you love yours, I want the best for him, yet I cannot
give in to him. He looks to me and I must teach him,
just as you teach your child. I may do it differently,
because my child is different. He learns in his own way,
and I have to teach him in a way that to others may seem odd, or unusual.
Magic? Oh yes, there is magic. I have seen my child blossom, I have
seen him learn, I have watched his wonder, and rejoiced in his small
steps. His smile is magic, and his heart is gold.
I did not choose this journey, but somehow it is mine, and I must see the
roses, as I walk upon the rocky pathway. I did not ask for this, but it
was given to me, and I must be strong enough to bear it. If I cannot,
then I am lost, if I give up, who will take my place?
There is enough joy, if I look for it……. it will find me.
by Sally Meyer 1999
A nice quote: “I always wondered why somebody doesn’t do something about that. Then
I realized I was somebody.” – Lily Tomlin